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Temps de fonctionnement: 07:48 hrsVoix de: Apple Samantha (synthetic)Publisher:BC Libraries Cooperative, 2015
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Publisher:BC Libraries Cooperative, 2015
Details:
- Author: Urquhart, EmilyEdition: 1st ed.Date:Created2015Summary:
The story begins on St. Stephen's Day, 2010, in St. John's, NL, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. After three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime indoors. A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide.
Sujets: Albinos and albinism | Families | Parents of children with disabilities | Children with disabilities--Care | Marginality, SocialOriginal Publisher: Toronto, Harper AvenueLanguage(s): EnglishCollection(s)/Series: British Columbia's National Award for Canadian Non-Fiction 2016